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thechronicillnesslifestyle

"Sicker than your average"

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Two chronic illness essentials: ice packs and proper support pillows. . I’ve been majorly slacking but don’t forget about the EDS Awareness Month Giveaway! πŸ¦“. . To enter like this post and head over to @lifehacksforchronicillness for more details. Two winners will be selected! πŸ‘―β€β™€οΈ. . . . #eds

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Savannah Lynn βš°οΈβ™€οΈ (@savyy4minnie) Instagram Profile Photo savyy4minnie

Savannah Lynn βš°οΈβ™€οΈ

image by Savannah Lynn βš°οΈβ™€οΈ (@savyy4minnie) with caption : "Day 27: #EDSAwarenessMonth2018
#Repost @ehlers.danlos ・・・
EDS Truth #8:
Too often, diagnosis of EDS/HSD takes 10+ years " - 1788859852504908871
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Day 27: @ehlers.danlos ・・・ EDS Truth : Too often, diagnosis of EDS/HSD takes 10+ years from the onset of symptoms. We are working on improving this through education and awareness. Follow us for more EDS/HSD Myths and Truths during Ehlers-Danlos Awareness Month! Learn more about the Ehlers-Danlos syndromes (EDS) and hypermobile spectrum disorders (HSD) at ehlers-danlos.com. #EDS

image by Lydia (@thespooniecorn) with caption : "[Caption reads:] I bought some new makeup the other day, and I finally tried it out today!
I bought an eyeshadow palette" - 1788858521962822849
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[Caption reads:] I bought some new makeup the other day, and I finally tried it out today! I bought an eyeshadow palette with ?? shades, and the first eyebrow pencil (or product) that actually matches my hair. I had so much fun, and I absolutely loved how it looked! It also helped me shape my eyebrows for the first time in months lol I haven't worn makeup in a long time, and I think I'm going to start wearing it more often because I really like wearing simple makeup. My skin can't really handle foundation or anything, so all I can wear is eyeshadow, eyebrow products, and very specific lip balms/glosses. I hope you enjoy EDS awareness month and you have a great day full of spoons!! πŸ₯„πŸ₯„ [Caption ends] {Image Description: A photo of a green zebra Stripe background with white text. The text reads; EDS random fact : We get "fake-heart attacks". It's a condition called costochondritis. It's an inflammation of the rib cartilage. Feels like an elephant is stepping on your chest. It's super scary the first time. Then not so much.}

Learning how to live & love (@spooniekata) Instagram Profile Photo spooniekata

Learning how to live & love

Kathryn Pakdel (@the_eds_baker) Instagram Profile Photo the_eds_baker

Kathryn Pakdel

image by Kathryn Pakdel (@the_eds_baker) with caption : "Gluten free lemon sponge cake with homemade whipped cream and berries. Accidentally patriotic. Ha!
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#glutenfree" - 1788849563256418943
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Gluten free lemon sponge cake with homemade whipped cream and berries. Accidentally patriotic. Ha! . . . . . #eds

Heather Cathey Thiele (@funnytrumpsall) Instagram Profile Photo funnytrumpsall

Heather Cathey Thiele

image by Heather Cathey Thiele (@funnytrumpsall) with caption : "Stitches out on Friday. Being able to be in a slightly lighter room for part of the day & to hold Willow for a bit. Each" - 1788846565268595628
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Stitches out on Friday. Being able to be in a slightly lighter room for part of the day & to hold Willow for a bit. Each new step is promising πŸ’™ #eds

Murray Meetze (@murraymeetze) Instagram Profile Photo murraymeetze

Murray Meetze

Instagram Image by Murray Meetze (@murraymeetze) with caption : "Today's #EDSAwareness moment brought to you by unpronounceable Greek words & an old low quality photo. Yes, I know my le" at Columbia, South Carolina - 1788841166402227681

Today's moment brought to you by unpronounceable Greek words & an old low quality photo. Yes, I know my legs are long. No, I'm not tall. The Ehlers-Danlos Syndromes (EDS): Dolichostenomelia is the term for the unusually long limbs sometimes seen in heritable connective tissue disorders.

Nirvana Marie (@nirvanamarie) Instagram Profile Photo nirvanamarie

Nirvana Marie

Instagram Image by Nirvana Marie (@nirvanamarie) with caption : "I've always struggled with writing utensils. How have I not known about this pen?!? #eds #edslife #penagain" at Bremerton, Washington - 1788840678353846382

I've always struggled with writing utensils. How have I not known about this pen?!? #eds

billie 2/22/18 (@captive.by.illness) Instagram Profile Photo captive.by.illness

billie 2/22/18

image by billie 2/22/18 (@captive.by.illness) with caption : "I've rescued a kitten but I can't seem to find him a home. he's starting to grow on me and I even named him. but I'm una" - 1788833420437313120
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I've rescued a kitten but I can't seem to find him a home. he's starting to grow on me and I even named him. but I'm unable to constantly give him attention do to my health. please wish me luck that I find this little guy a home! #eds

Sarah Marie ✨ (@strongerthanpots) Instagram Profile Photo strongerthanpots

Sarah Marie ✨

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If life forces you to be horizontal, you might as well be horizontal in the woods. β˜€οΈ

Dominique Jansen (@xdo_x) Instagram Profile Photo xdo_x

Dominique Jansen

image by Dominique Jansen (@xdo_x) with caption : "Open de koektrommel en ontdek al het lekkers in de muziekwereld.

#minime #drums #littledrummer #cookiejar #drumsticks  " - 1788822993466299854
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Open de koektrommel en ontdek al het lekkers in de muziekwereld. #eds