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#cysticfibrosislife photos and videos on Instagram

Medias attached with hashtag: #cysticfibrosislife on Instagram

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Natalie Keil (@talie_keil) Instagram Profile Photo talie_keil

Natalie Keil

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Winner winner Mexican bake dinner with nachos... This was actually from a vegetarian cookbook but I added a little mince because I'm pure wild like that 🇲🇽🇲🇽🇲🇽 followed by fruit & marshmallow kebabs for dessert life

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Merritt O’Neill • PDX (@mkrixann) Instagram Profile Photo mkrixann

Merritt O’Neill • PDX

Instagram Image by Merritt O’Neill • PDX (@mkrixann) with caption : "Hey fam, if you saw my Facebook post a few days back you’ll know that I’m on IV antibiotics again (even though it took a" at Portland, Oregon - 1825934293739190216

Hey fam, if you saw my Facebook post a few days back you’ll know that I’m on IV antibiotics again (even though it took a ridiculous initial 11.5 hours in the ER, 3 additional days, and 30+ phone calls between today and yesterday to finally get it to start tonight). I got PFTs done today and I’m at 62% lung function. Not my worst, but I definitely feel pretty shitty. As per usual, I apologize if I’m relatively unresponsive for the next 4-5 days while my body adjusts! Feel free to comment below with your favorite series or documentaries on Netflix/Hulu/HBO/Whateverthefuck. I’m excited to feel better :) love you all & thank you for all of the messages I’ve received so far!

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ACF Life (@_acflife) Instagram Profile Photo _acflife

ACF Life

image by ACF Life (@_acflife) with caption : "happy. #cysticfibrosislife #posttransplant #happy" - 1825528465206852960
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happy. #cysticfibrosislife

Rebecca Lucy (@beckymae10) Instagram Profile Photo beckymae10

Rebecca Lucy

image by Rebecca Lucy (@beckymae10) with caption : "Prayers for this little dude as we head to his CF appointment tomorrow. We haven’t been in 2 months and don’t really kno" - 1825099205170716333
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Prayers for this little dude as we head to his CF appointment tomorrow. We haven’t been in 2 months and don’t really know what to expect. Pray that he has gained enough weight as well because that’s always a struggle! life

I Want To Breathe (@iwant2breathe) Instagram Profile Photo iwant2breathe

I Want To Breathe

image by I Want To Breathe (@iwant2breathe) with caption : "Yay hospital 😀
No jokes I am glad that I am at hospital" - 1824968605347879541
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Yay hospital 😀 No jokes I am glad that I am at hospital

Going to a local baseball game sounds like such a simple fun event. For someone with Cystic Fibrosis, it doesn’t mean taking time away from my health. Being in a group of people means a greater chance of catching a germ. I make sure to carry hand sanitizer. Soon after I got there, I ran into my friend who also has Cystic Fibrosis. He is post transplant, but that doesn’t mean we can forgo any precautions. We still kept our distance while we talked and ended up sitting about 20 feet apart. At the end of the game, there was fireworks, which means smoke. And lots of it. I’m not a stickler on keeping out of smoke if it’s something small like a fireplace, bonfire, or fireworks. It’s a different story if it’s a wildfire causing lower air quality. While many people feel the explosion and think nothing of it, it can actually make me cough. 😅 One of the therapies for CF is manual chest percussion to help break spark the mucus in our lungs. Going to loud music festivals (raves or rock shows) can also have a similar result. It’s so much better to have fun while getting chest percussions. Lol.

image by Ruth McEnaney (@ruthnaturallyliving) with caption : "We went on holiday for a week (home yesterday) and I forgot my trelegy inhaler and DNase. Trelegy is a triple combinatio" - 1823443935143734419
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We went on holiday for a week (home yesterday) and I forgot my trelegy inhaler and DNase. Trelegy is a triple combination and basically is long lasting bronchodilator and steroid. DNase helps break down the mucus in the lungs. I never thought I'd say this but man, I missed them! My chest is not what it should be but hopefully I can turn it round before annual review on Thursday morning... life